The National Prion Disease Pathology Surveillance Center (NPDPSC)
Creutzfeldt-Jakob disease (CJD) has been called "the silent killer", "Alzheimer's in fast-forward", and "the Great Mimicker". It is a rare, neurological [brain] prion disease that is always fatal. It cannot be killed, and has baffled scientists since the 1920's. The only way to positively confirm a CJD diagnosis is through autopsy.
"Autopsy in prion disease is so important that the US Centers for Disease Control and Prevention [CDC] has actually funded a Center [National Prion Disease Pathology Surveillance Center] dedicated to require autopsies in patients with CJD. The information that we acquire allows us to learn about the mechanism of how these diseases occur, into further investigating what potential treatments might be affective for prion disease as well as other neurodegenerative diseases. We are incredibly indebted to the families and patients who have already contributed to our research, and together, we hope to fight for a cure for these devastating diseases"....Dr.Michael D. Geschwind, MD, PhD, Assistant Professor of Neurology, UCSF (Source: http://memory.ucsf.edu/cjd )
The Surveillance Center (located on the CWRU campus) has updated their website, and it's excellent, you can view it at this link: http://www.cjdsurveillance.com
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