CJD Aware! has the following information available in their education packet about Creutzfeldt-Jakob disease:
Brochures: What is CJD? - Types of CJD - Dementia - Resources in USA/Overseas - Donating Blood - International CJD Awareness Day - Medical DVD's from the CJD Foundation - Promoting CJD in Your Community - New Tests/Urine - NIH Scientists/Nasal Brush - Notifiable Disease - Microglia Key Defenders - Prions in the Skin - UCSF brochure - Current Clinical Trials - Nat'l Prion Disease Pathology Surveillance Center - Eyes of CJD Patients - Rare Disease Legislation - Rare Disease Day/NORD - Current CJD Research
More information (to be included in packet) coming soon.
Included in all our education packets:
1. 'Primer on Human Prion Disease' - geared for medical professionals (UCSF)
2. Creutfeldt-Jakob Disease: A Practical Guide for the Embalmer (New Jersey Funeral Service Education Corporation)
3. Information on Creutzfeldt-Jakob Disease for Funeral Home, Cemetery and Crematory Practitioners (NY State Dept. of Health)
4. Medical Terms in Creutzfeldt-Jakob Disease (UCSF), is a layman's definition of clinical terms (e.g. ataxia, 14-3-3 test, etc)
Please check back to this page periodically, we update/add brochures, newsletters and print-outs with the latest information as it becomes available to our office. Our education packets are FREE of charge, if you wish to obtain one, send an email to our office containing your mailing address and one will be shipped out to you asap.
Some external links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by CJD Aware! of any opinions of the organization or individual.