CJD Aware! has the following information available in their education packet about Creutzfeldt-Jakob disease:
Brochures: What is CJD? - Resource Listings (United States) - Resource Listings (Overseas) - Types of CJD - The National Prion Disease Pathology SurveillanceCenter -A Notifiable Disease in the United States - Rare Disease Legislation - Dementia and CJD - Alzheimer's Disease or Creutzfeldt-Jakob Disease - Donating Blood - Idaho CJD Legislation - International CJD Awareness Day (Nov. 12th) - Current Research for Creutzfeldt-Jakob Disease - NORD's Rare Disease Day - Clinical DVD's For Medical Professionals (available from CJD Foundation) - Creutzfeldt-Jakob Disease/The Importance of MRI's - Current Clinical Trials for Creutzfeldt-Jakob Disease - CJD Aware!: An Organizational Overview - UCSF Memory and Aging Center - Promoting Creutzfeldt-Jakob Disease Awareness In Your Community - NIH Scientists and Collaborators Find Infectious Prion Protein in Skin of CJD Patients - Microglia Are Key Defenders Against Prion Diseases
Future Brochure: CDC's National Neurological Surveillance System
Now available for medical professionalsonly: Infection Control Manual (27-pages and bound) compliments of UCSF. This manual contains clinical terminology and is geared towards hospital infection control and cleaning w/suspected or confirmed CJD patients. Included in all our education packets: 'Primer on Human Prion Disease' (courtesy of UCSF), Creutfeldt-Jakob Disease: A Practical Guide for the Embalmer (courtesy of the New Jersey Funeral Service Education Corporation); and Information on Creutzfeldt-Jakob Disease for Funeral Home, Cemetery and Crematory Practitioners (courtesy of the NY State Department of Health); Medical Terms in Creutzfeldt-Jakob Disease, this excellent print-out, courtesy of UCSF, is a layman's definition of clinical terms (e.g. ataxia, 14-3-3 test, extrapyramidal signs, etc)
Please check back to this page periodically, we update/add brochures, newsletters and print-outs with the latest information as it becomes available to our office. Our education packets are FREE of charge, if you wish to obtain one, send an email to our office containing your mailing address and one will be shipped out to you asap.
Some external links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by CJD Aware! of any opinions of the organization or individual.