CJD Aware! was formed in the spring of 2002 after the death of the founder's mother, Sara Brom, from the classic (sporadic) form of Creutzfeldt-Jakob disease (CJD). With the full-support of local doctors, and encouragement from family and friends, CJD Aware! was founded with these important goals: to become a single resource for anyone who is searching for answers to this rare, elusive disease; to assist with raising funds for much-needed additional CJD research; to network with other organizations, both domestic and overseas.
We're here to direct our readers to as many resources as possible to obtain the information they need about Creutzfeldt-Jakob disease (CJD). There are many excellent websites available that contain the qualified medical information that's needed about this rare infectious disease. Many of us, who can speak from personal experiences, wish Creutzfeldt-Jakob disease didn't exist, but unfortunately, it does. We hope doctors and researchers will be able to wipe this disease out of existence in the future.
Important Note: CJD Aware! is an online information center ONLY, we CANNOT give out medical diagnosis/opinions nor promote treatments. We also cannot assess any medical tests.
Some external links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by CJD Aware! of any opinions of the organization or individual.