Social Security - Compassionate Allowances Conditions "...Compassionate Allowances are a way of quickly identifying diseases and other medical conditions that clearly qualify for Social Security and Supplemental Security Income disability benefits.  It allows the agency to electronically target and make speedy decisions for the most obviously disabled individuals."  (Source:  NORD [National Organization for Rare Disorders] press release) The list is in alphabetical order, Creutzfeldt-Jakob Disease is on the list. http://www.socialsecurity.gov/compassionateallowances/conditions.htm Applying for Social Security Disability with Creutzfeldt-Jakob Disease (CJD) click link below: http://disability-benefits-help.org/compassionate-allowances/creutzfeldt-jakob-disease-and-social-security-disability UPDATE:  If you are a CJD patient, or a relative of a CJD patient in the Washington, DC area who has qualified for Social Security disability assistance through the Compassionate Allowances program and would be willing to share your story, please contact CJD Aware! (email to the upper-right of this page) so we can let NORD [National Organization for Rare Disorders] know asap.  NORD is working to educate members of Congress about this program, and would like to include a few very short (1 or 2 minutes) interviews with patients or family members in a video on that topic. There is contact information shown on the above link if individuals have further questions.
Some external links are being provided as a convenience and for informational purposes only;  they do not constitute an endorsement or an approval by CJD Aware! of any opinions of the organization or individual.

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